I am an Undergraduate Student who has Reflex Sympathetic Dystrophy and embraces the Vegan lifestyle. Reflex Sympathetic Dystrophy is a Chronic Neurological Condition that I hope and pray there will be a cure to one day. Until then I live my life to the fullest, embrassing the life the Good Lord has given me.

Friday, September 24, 2010

Hard Time For My Family

Hello All,

I hope you are all doing well and enjoying these gorgeous warm days. Today is the first full day of fall, and it was 95 degrees here in Ohio. I wore a cute mini skirt with a tank top. I never believed that I would be wearing this in fall, and in Ohio of all places! I am enjoying the weather even though its playing havoc on my RSD. The constant change in the weather from hot to cold and back is extremly hard on my body. Add on the stress of school and no accomidations (long story and not too happy) it makes it hard but Im making it.




Earlier in the school year, the first week to be exact my Cousin who had Colon Cancer lost his battle. It has been a hard month for all of us but for his immediate family especially. The good thing is we are a close family and we are able to support each other while we are going through this. I will be going to West Virginia tomorrow to join the rest of my family to Celebrate my cousin's life. We are having a get together where he loved to go 4-Wheeling. I am happy that I get to join my family as I didnt believe I was going to be able to. J was able to get the day off tomorrow so we are driving down there tomorrow. Im thankful that I get to spend the day with my family as I miss them and believe it will help being with them.


Ill let you know how things go. Its been hard to post as classes have me busy. I hope to post about Wv soon and about how my classes are going. Also about why I dont have any accomidations right now even though I sent in the proper paper work ahead of time.

3 comments:

  1. I am so sorry to hear about your cousin, it is always hard to lose a loved one.

    Are your professors helping at least until the official accommodations are set up? That must be really stressful! I hope your classes are going well.

    One of my profs. is trying to convince me to hire her sister to sue my doctor because I'm not cured. It doesn't matter how I explain it to her or if I show her info from RSDSA, she's convinced that it's my doctor's fault (he's amazing btw, I have no complaints). I really, really hope you have no one like that.

    Enjoy being with your family, especially at a time like this.

    ReplyDelete
  2. Thanks Andrea,

    When I was at my other college the Disability Dept was in one office along with the seperate testing center. I got accomidations right away after my IEP was sent to the school and I was given a letter to give to each of my prof to let them know about the accomidations.

    When I talked to the disability center here over the center I thought the same thing would happen. I filled out the form they sent me to fill out and provided the paperwork that was required. I didnt here anything for the first 2 weeks of school and had to send several emails to different people. After getting the run around I found out that my Dr has to fill out another form that he could have filled out during my surgery. The form could have gotten processed earlier and could have gotten accomidations for this semester. I feel like Im getting the run around for no reason other than the school is dis-organized in the accomidations dept.

    Im about to email them since the wheather is changing. My RSD is acting up and I dont know what Im going to do when its winter.

    ReplyDelete
  3. Hi,

    I have a quick question about your blog, would you mind emailing me when you get a chance?

    Thanks,

    Cameron

    cameronvsj(at)gmail.com

    ReplyDelete