RSD is becoming more and more common at a younger age. In past years it was thought that only adults could get RSDS (Reflex Sympathetic Dystrophy Syndrome). It was thought that children with unexplained pain were either making the pain up, it was physiological, or that they had another form of RSD that Dr's thought was based in the muscular system.
Since more PM's are realizing that RSD can and do happen to present in children more research is being done on new treatment options and the long term-effects of RSD. It is true that children who are diagnosed earlier have a greater chance of going into remission but going into remission doesn't mean your 100% free of having RSD. Once someone has RSD even if they are in remission, it is easier for it to spread and come back with any injury he or she obtains later in life. This can be hard for children and teenagers who want to be active with their peers but have to be careful.
At this point little is know what goes on with those who have RSD long term. RSDSA is currently conducting a survey to try to understand what goes on. The results may not be published for a good while still. I have several friends who have had RSD about as long as I have and have gotten it around the time I did. Both girls seem to be having the same internal RSD symptoms like I have. One girl got diagnosed with RSD in the stomach like I did and the other girl just recently got diagnosed with RSD in her kidney. It makes me wonder if this is one of the long term effects of RSD.