I am an Undergraduate Student who has Reflex Sympathetic Dystrophy and embraces the Vegan lifestyle. Reflex Sympathetic Dystrophy is a Chronic Neurological Condition that I hope and pray there will be a cure to one day. Until then I live my life to the fullest, embrassing the life the Good Lord has given me.

Showing posts with label Doctor. Show all posts
Showing posts with label Doctor. Show all posts

Monday, March 15, 2010

Treating Pain

Treating chronic pain has been tough for all Doctors alike. Doctors are not taught in medical school how to treat chronic pain. Actually most Doctors do not like taking on chronic pain patients, especially those with Reflex Sympathetic Dystrophy. Doctors dont like taking on chronic pain patients because they are so hard to treat, RSDers especially.

I have been blessed with two amazing Dr's who fully believe in me. My Pain Management Dr has been looking for a cure for RSD and wont give up until he finds one. He is devoted to his patients and making sure they get the best pain relief possible.

Here is an article on treating Pediatric Chronic Pain. Thankfully I was able to find an amazing Dr who has helped me get through these last 8 years.




Friday, February 5, 2010

Spreading Awareness

Reflex Sympathetic Dystrophy Syndrome aka Chronic Regional Pain Syndrome; is a chronic neurological condition characterized by

severe burning / stabing pain
extreme sensitivity to touch
tissue swelling
excessive sweating
pathological changes to bone and skin


Reflex Sympathetic Dystrophy Syndrome (RSD) has changed my life. It has changed my life in ways I could never imagine. I never thought at 12 yrs old that a sprain of my left wrist could leave me in unbearable pain that tops the McGill Pain Charts. It will be 8 years this March, that I have had this syndrome. Due to the fact that there are several symptoms of RSD (above) and the Dr's and Researchers are not able to pinpoint the exact cause of RSD it is classified as a syndrome. Due to the fact that there is no exact cause, the treatments that RSDers are given are mostly experimental. Some treatments are routine by now but not every treatment works for every RSDer's pain. The same goes for medication. Every person's body isnt going to react the same to the same medicine therefore finding a treatment that works is very hard.

People who have Pain or even Chronic Conditions are seen as depressed or end up developing depression due to the fact that family members and friends don't believe their pain. I have been blessed in the fact that I have not developed depression. I have kept myself active by being able to go to College and have been surrounded by people who support me in my fight with RSD. I am able to openly talk to my mom or a friend about my feelings about how I feel especially if I get stressed over a test or just how my day went.

This morning I was awoken by the familiar pain of my constant companion. Everyday I am reminded how badly we need awareness of this condition when I talk to RSDers online about how much pain they have experienced that day, it absolutely kills me inside. We can modify our diets all we want to but RSD will always be prevalent. It will be rearing its ugly face until a cure is found and Doctors and Politicians are Educated about how much PAIN people are living with day in and day out.

*RSD Symptoms (Above): www.rsds.org
*McGill Pain Index: http://www.rsdhope.org/ShowPage.asp?page_id=116

** Im still sticking to my vegetarian diet, its actually proven that red meat increases inflamation.
http://www.organicauthority.com/health/health/are-the-foods-you-are-eating-keeping-you-in-pain.html